From the category archives:

Congenital Heart Defects

Magic Numbers

by Dr.Mani on December 17, 2010

RE-TWEET IT!

I shared a message with my email subscribers. It was about my Magic Number.

My friend Shel Horowitz tweeted me some feedback about it. One point he made was the possible lack of confidence inspired by my mentioning (to a primarily U.S. audience) that we’d only raised around $135,000 since starting this effort.

Curious, I Googled the topic – and found this recent article in TIME.

“With 3.3 million registered NGOs, India’s nonprofit sector raises between $8 billion and $16 billion in funding every year.”

Hmm… that was interesting data. And then, I came to this startling statement.

“…of $2.15 billion in foreign aid recieved, around $680 million was used for organizational expenses.”

That’s almost 31% of the funds raised being spent on administrivia. (For comparison, my Foundation averages THREE percent!)

And that led me to think about constraints and hurdles I’ve faced in fund raising adventures over 7 years, which might make for an interesting blog post. Here it comes.

There have been many limitations in my efforts to raise money for helping children from under-privileged families receive expensive treatment for congenital heart defects.

The biggest among these were:

Credibility – Ten years ago, with no track record to point at, I had to rely on the trust of people (who had never even met me!) to support my fledgling efforts. Fortunately, enough of them cared to help make it happen… and bring us to this point where I can point at many smiling faces for proof.

Time – Until recently when I chose to make this project a full-time activity, I was juggling duties as Assistant Professor at a busy University hospital with managing a thriving online information business, leaving me severely hard-pressed for time to handle everything that needed attention.

Laws – Constantly changing and getting ever more restrictive (for legitimate reasons, to prevent money-laundering and terror funding), these made it increasingly harder to raise and transfer foreign funds into India.

Patient factors – Having a waiting list without adequate funding was impractical. So whenever funds became available, we went through a sequence of activities to find and bring in kids to undergo surgery. The lack of a structured process made this time-consuming and uncertain.

Transparency – Without popular 3rd party validation agencies with sufficient clout to have impact, getting ‘certified’ as a valid NGO in India was impossible. The few smaller ones had exceedingly complex application steps which would require a full-time staff member to deal with requirements. (One had an 86-page form just to apply for registration!)

Amid all this, I gamely battled on. Patched together a system that worked, even if not very efficiently, to raise funds and carry out 70 heart operations.

But suddenly, policy changes at our primary payment processor jerked the rug out from under us in July. Suddenly, the fragile edifice cracked and looked ready to collapse. It took a determined and focused phase of activity to cobble it back together – and a more permanent solution is being worked on as we speak.

From one perspective, seven years of action without leading to a rock-solid system to overcome all these hurdles seems to indicate a slacking off and waste of time, or misguided effort and lack of direction. And regardless of how harsh you or anyone else may judge me on this, I suspect it won’t be 10% as hard as I’ve been on myself.

But compared against the average Indian NGO which is often better staffed, organized and managed than my smaller Dr.Mani Children Heart Foundation, our performance (even if not shining or stellar) is fair. As this “Civil Society” article says,

“Very few of India’s NGOs are very big: there are perhaps just 200 with more than Rs 25 crores (US$5 million) each to spend in a year. Around 70 per cent are the very small organizations, some with as little as Rs 4 or 5 lakhs (US$10,000) in a year. It is these small outfits which reach out to communities, work at the grassroots and represent the true spirit of an active and vibrant voluntary effort.”

Are there problems? Of course. There is corruption and mishandling of funds. Some Indian charities are structured so that they are merely tax saving entities rather than delivering value to their beneficiaries. And overheads can be steep, as the 31% average figure indicates.

But that’s the tiny minority of “rotten apples” you’ll find in just about any barrel you choose to poke around in. As “Civil Society” comments,

“These are valid concerns, but not as widespread as it has become fashionable to imagine. Essentially people who take up causes really care and they are as honest as the system allows them to be.”

And so the battle continues. Evolving and adapting to the uniqueness of India’s non-profit environment is an interesting, sometimes frustrating, and never uneventful experience, one where creativity and innovation are often better and more rewarding weapons against uncertainty than credentialing and striving to comply with norms.

That’s why I try different and unconventional approaches. Like running this special “Business Booster Sale” which promises to give business owners incredible value for making a contribution to charity.

Far better than just going to them, hat in hand, with an appeal seeking a donation, don’t you think? Take a look at this offer (you’ll be blown away by how much value you’ll get) and tell your friends about it too. But hurry – because it ends on December 31st, 2010.

And you can also be in my “Magic Forty”get more details here

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Branding Indian Cardiothoracic Surgery Worldwide

by Dr.Mani on October 22, 2010

RE-TWEET IT!

12 years ago, at Great Ormond Street Hospital in London where I went for a one-year fellowship in pediatric heart surgery, I was often asked “Do you know Dr.Cherian?”

This question always surprised me. After all, there are over 1,000 heart surgeons in my country, and I hadn’t even mentioned that I was from Chennai. That’s how well known this pioneer of Indian pediatric cardio-thoracic surgery was around the world.

For years, we young, hopeful students of heart surgery had been aware of the hallowed names of the nation’s top professionals. And one that stood out was K.M.Cherian. There was much said about him – not all of it complimentary, but all of it legendary!

His remarkable technical skills. His amazing drive and energy. His genuis at building teams and drawing the best from them.

But looking back years later, what strikes me as Prof.Cherian’s biggest impact is that he branded Indian cardiothoracic surgery globally – as a high quality, mission-driven and compassionate specialty that’s no less than anywhere else in the world.

Today, if Chennai is considered the heart surgery capital of the fastest developing democracy in the world, then a large share of that branding effort goes to Dr.Cherian. My first personal experience of his impact was at a World Congress he organized in 1995 – at which, as a resident in training, I rubbed shoulders with some of the biggest names in the global cardiac surgical fraternity.

Fifteen years later, the 20th World Congress of Cardio-thoracic Surgery that’s now underway in Chennai is another jewel in his glittering crown. Professionals from 40+ countries converge on a city thousands of miles away because of one man’s effort at branding a specialty in their minds – as the very best.

And as surgeons from Uganda and Taiwan, Tanzania and Bangladesh, all narrate the tale of how they established cardiac units starting from scratch in their respective nations, thanks to the know-how, support and encouragement they received while they trained with Dr.Cherian in India, it opened my eyes to another new dimension of the pioneer surgeon’s impact on our specialty globally.

The ripple that Dr.K.M.Cherian has set off in his lifetime will only grow bigger and touch many more thousands of lives, as those empowered and inspired by his dream, vision and actions carry the baton and build upon a solid foundation.

Hopefully, a lot of what we (as a cardiac surgical community in India) say and do in the future will reinforce that brand of “Heart Surgery India” in a way that remains a tribute to the man who helped put India on the world map in this area.

I know my own actions will be guided by that goal… and I tip my hat to a hero and role model!

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If God Took Human Form…

I have many heroes in my chosen field of heart surgery. Like Dr.Denton Cooley, Dr.K.M.Cherian, Prof.Marc de Leval and Dr.William Novick. Yesterday, I met another one.
Until I attended his lecture at the 20th World Congress of Cardio Thoracic Surgery, I had never heard of Russell Lee. After it, I won’t forget him!
Quiet, [...]

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In Your Hands

Someone asked me once what it is like to hold the heart of a child in my hand.
“It must be so tiny,” he said. “How can you see to put the stitches in?”
I thought for a moment.
“It is tiny,” I agreed. “It is the size of a hummingbird.”

“And sometimes that is what I think [...]

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Just Imagine

Imagine…
A tiny little two year old girl in my out-patient
clinic. Bright eyes. Long, curving eyebrows. Jet
black, curly hair.
But her breathing is labored. Her chest heaves
and falls with every heart beat.
Her pinched, anxious face is intense with the effort
it takes to suck air into her starving lungs.
I place my stethoscope [...]

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A.R.Rahman and Congenital Heart Defects Awareness

It was around 8:00 p.m. I was working on a blog post, when my wife read about it on a news website.
“A.R.Rahman’s daughter had surgery – for a congenital heart defect.”
The familiar cold feeling gripped my heart. Fifteen years of fighting this deadly scourge hasn’t yet made me immune against it. I [...]

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Infant Mortality Rate – Just a number?

In today’s newspaper, I read an interview (”All Lives Have Equal Value“) with Melinda Gates, co-founder of The Gates Foundation. She said “Bill and I care about keeping all kids alive.”
In medical school, we study pediatrics as a subject. One surefire question that was asked in oral examinations related to “Infant Mortality Rate” [...]

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When Heart Surgeons Use Viagra!

Now this is WIERD! Real weird!
I drafted a post about a certain drug – and couldn’t post it here on my blog despite trying many different ‘tricks’ (including turning off my spam filters!)
So, I put it on a separate web page – you can read it here!
What’s inexplicable to me is how I find [...]

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Wanted: Evangelists (Celebrity Optional)

Seth Godin pre-launched his new book, LINCHPIN – in style. In the process he helped raise $100,000 for the ACUMEN fund.
I’m working on my 2010 budget for the Dr.Mani Children Heart Foundation. We are likely to spend $45,000 to sponsor more heart operations (between 80 and 110).
Viewing these two facts together brought something [...]

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On The Threshold

Image credit sxc.hu
In a few days, an event for which I’ve planned and prepared for months will take place. On August 25th, 2009 I will officially ‘launch’ my first ever print book,
“Think, Write & Retire – How To Turn Words Into Wealth, Easily!“
On the threshold of this special moment, there are mixed feelings. [...]

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